From the perspective of parents, the role of health care professionals goes beyond simply caring for the physical needs of infants and parents. In a real sense neonatal doctors and nurses, and those in labor and delivery, are caring for the entire family. Most families are completely unprepared for the NICU experience or the devastating news that a precious baby has died. At these times, families need a caring presence from someone not personally overwhelmed with the emotional upheaval that is swirling around. While many families turn to their religious leaders, many are simply not spiritually connected and most do not have access to the continual presence of pastoral care. That leaves those who are closest to the situation, namely the nurses, hospital pastoral care representatives, social workers, and doctors, that can reach out to offer comfort and guidance.

The attitude and compassionate concern of health care professionals makes all the difference in the world. Even the little things like a comforting smile or a shoulder to cry on may be what an overwhelmed parent will remember forever.
The time families spend with you on your unit will be remembered. Your interaction with them and their baby is a huge part of their story, especially for those whose baby will not go home.

We have created our books so that families with sick and dying infants have a special place to tell their unique story. Their time on your unit, and the things that occur there, are their story, or at least the beginning of it. Look at the other articles to see how your unit can help parents tell their story- creating lasting memories to treasure.

Speranza is committed to making these books available to as many families as possible. We offer discounts to units, support groups and clinics that donate our materials to parents- please call for details.